The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities.

ABSTRACT:

Introduction

Empowerment of families raising children with developmental disabilities (DDs) is essential to achieving rights-based service development.

Methods

In this qualitative study, we investigated stakeholder perceptions on the role of advocacy and empowerment in developing caregiver interventions for families of children with DDs in a global context. Participants had experience with at least one intervention, namely the Caregiver Skills Training developed by the World Health Organization (WHO). Participants were clinicians, caregivers and researchers representing five continents, and representatives of WHO and Autism Speaks. Two focus group discussions and 25 individual interviews were conducted. Data were analysed thematically.

Results

Three themes were develo

SUBMITTER: Szlamka Z 

PROVIDER: S-EPMC9327816 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature