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Dataset Information

A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food.


ABSTRACT:

Background

Inflammatory bowel diseases (IBDs) are chronic gastrointestinal diseases that negatively affect the enjoyment of food and engagement in social and cultural gatherings. Such experiences may promote psychosocial challenges, an aspect of IBD often overlooked and under-supported in clinical settings and research.

Objectives

This study explored the psychosocial experiences that young adults with IBD have with food via a qualitative patient-led research process.

Methods

Trained patient researchers conducted this study by engaging peers via semi-structured interviews and focus groups in a three-step co-design process. Participants (n = 9) identified the research topic (SET), explored the topic and identified emerging themes (COLLECT), refined themes and made recom

SUBMITTER: Rines J 

PROVIDER: S-EPMC9327832 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature