Ontology highlight
ABSTRACT: Background
Most patients are unaware of approaches to treating advanced chronic kidney disease (CKD) other than dialysis.Methods
We developed a dedicated decision aid on conservative kidney management using human-centered design principles in three phases: (1) discovery: engagement of informants to understand their needs and preferences; (2) design: multiple rapid cycles of ideation, prototyping, and testing of a decision aid with a small group of informants; and (3) implementation: testing the decision aid in real-world settings with attention to how the decision aid can be further refined. Informants included a national patient advisory committee on kidney diseases, 50 patients with stage 4 or 5 CKD and 35 of their family members, and 16 clinicians recruited from the grea
SUBMITTER: Wong SPY
PROVIDER: S-EPMC9337892 | biostudies-literature | 2022 Jul
REPOSITORIES: biostudies-literature