Quality of life in childhood advanced cancer: from conceptualization to assessment with the Advance QoL tool.

ABSTRACT:

Background

Advanced childhood cancer, a condition with no available cancer-focused treatment options, greatly impacts Quality of Life (QoL). We need appropriate assessment strategies to select adapted treatment targets, improve care and optimize communication. Our first goal was to identify the domains of patients' QoL by combining for the first time the perspectives of patients and parents with previously collected reports in professionals. Our second goal was to develop a simple QoL assessment tool and optimize its format and content for use in the childhood advanced cancer population.

Methods

To identify QoL domains, we conducted qualitative interviews with 7 young patients (4 girls, 3 boys, aged 13 ± 4 yrs) and 9 parents (7 mothers, 2 fathers) from our treatment centre.

SUBMITTER: Avoine-Blondin J 

PROVIDER: S-EPMC9341040 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature