Dataset Information

Translation, cultural adaptation and linguistic validation of the pectus excavatum evaluation questionnaire.

ABSTRACT:

Background

Pectus excavatum often imposes significant burden on the patients' quality of life. However, despite the known biopsychosocial effects, the deformity remains underappreciated. Patient reported outcome measures can be used to measure and appreciate results from a patient's perspective. The pectus excavatum evaluation questionnaire (PEEQ) is the most employed disease specific instrument to measure patient-reported outcome measures (PROMs). A translation and linguistic validation of this questionnaire is presented for its use in the Dutch pediatric pectus excavatum population. By providing an insight in our translation process, we want to encourage other researchers to perform translations to other languages to make the questionnaire available to clinicians and researchers worldwide.

Methods

The 22-item PEEQ was translated and adapted according to the leading guidelines for the translation of patient reported outcome measures. Conceptual equivalence and cultural adaptation were emphasized.

Results

One forward translation was produced through reconciliation of two forward translations. Back translation resulted in 15 identical items, as well as 6 literal, and 1 conceptual discrepancy. The latter was expected as during the forward translation a more culturally appropriate translation was chosen. Ten patients were involved during the cognitive debriefing process, following which one item was revised and the final Dutch version was established.

Conclusions

We provide a culturally appropriate and linguistically validated Dutch version of the PEEQ.

SUBMITTER: Janssen N

PROVIDER: S-EPMC9344429 | biostudies-literature | 2022 Jul

REPOSITORIES: biostudies-literature

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Publications

Translation, cultural adaptation and linguistic validation of the pectus excavatum evaluation questionnaire.

Janssen Nicky N Daemen Jean H T JHT van Polen Elise J EJ Jansen Yanina J L YJL Hulsewé Karel W E KWE Vissers Yvonne L J YLJ de Loos Erik R ER

Journal of thoracic disease 20220701 7

<h4>Background</h4>Pectus excavatum often imposes significant burden on the patients' quality of life. However, despite the known biopsychosocial effects, the deformity remains underappreciated. Patient reported outcome measures can be used to measure and appreciate results from a patient's perspective. The pectus excavatum evaluation questionnaire (PEEQ) is the most employed disease specific instrument to measure patient-reported outcome measures (PROMs). A translation and linguistic validation ...[more]

PMID: 35928622

Similar Datasets

Project description:Abstract Background Peyronie’s disease has an impact on men’s mental and physical health. Aim We sought to translate the Peyronie’s Disease Questionnaire into Danish, adapt it to the Danish cultural setting, and test it in a Danish population. Methods Translation of the Peyronie’s Disease Questionnaire was performed according to the guidelines for adapting health status measures for use in languages other than the source language by Beaton et al. The validated American Peyronie’s Disease Questionnaire was developed to monitor patient symptoms after an intervention and to inspire a subsequent dialogue about physical and psychological symptoms with a healthcare provider, thereby allowing the patient and the healthcare professional to choose the best treatment. The expert committee agreed on a Danish version after cross-cultural adaptation. The Danish Peyronie’s Disease Questionnaire was sent by electronic mail to a preselected group of 41 men with Peyronie’s disease. Outcomes After completing the questionnaire, 32 men participated in a video interview regarding the questionnaire and were asked to identify any problematic fields or areas open to misunderstanding. Results The Peyronie’s Disease Questionnaire underwent major modifications in light of the comments of the first 10 respondents. Thereafter, only minor changes were made until data saturation was reached after 27 of the 32 respondents had been interviewed. In 87% of respondents Peyronie’s disease bothered from the last time they had intercourse, and 93% of the men experienced being bothered by having intercourse less often. Peyronie’s disease made 73% of respondents feel bodily discomfort, and 88% had intercourse less often than they used to have due to Peyronie’s disease. Clinical Implications The Peyronie’s Disease Questionnaire is a valuable tool in the crucial task of addressing Peyronie’s disease, providing insight into the mental and sexual health problems as well as physical challenges faced by patients. Strengths and Limitations The interviewer’s modest experience in conducting interviews is believed to have been duly compensated for by continuous and accumulating learning-while-doing process because the same interviewer conducted all of the interviews and did so consecutively. Conclusions Danish men expressed satisfaction with the questionnaire and found it valuable as a tool when visiting the doctor for the first time.

Dataset Information

Translation, cultural adaptation and linguistic validation of the pectus excavatum evaluation questionnaire.

Background

Methods

Results

Conclusions

Publications

Translation, cultural adaptation and linguistic validation of the pectus excavatum evaluation questionnaire.

Similar Datasets

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