Medicalizing risk: How experts and consumers manage uncertainty in genetic health testing.

ABSTRACT: Given increased prevalence of direct-to-consumer (DTC) genetic health tests in recent years, this paper delves into discourses among researchers at professional genomics conferences and lay DTC genetic test users on popular discussion website Reddit to understand the contested value of genetic knowledge and its direct implications for health management. Harnessing ethnographic observations at five conferences and a text -analysis of 52 Reddit threads, we find both experts and lay patient-consumers navigate their own versions of "productive uncertainty." Experts develop genetic technologies to legitimize unsettled genomics as medical knowledge and mobilize resources and products, while lay patient-consumers turn to Internet forums to gain clarity on knowledge gaps that help better manage th

SUBMITTER: Mukherjee M 

PROVIDER: S-EPMC9352100 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature