Caregiver's burden at the end of life of their loved one: insights from a longitudinal qualitative study among working family caregivers.

ABSTRACT:

Background

Growing numbers of people with advanced illnesses who wish to die at home, a concurrent decline in the accessibility of professional home care, and policies aiming at prolonging work participation are increasing the reliance on family caregivers. This study aimed to describe trajectories in burden of working family caregivers who care for patients with a life-threatening illness, and identify factors in work and care that are related to changes in burden over time.

Methods

Semi-structured interviews were held in one to four rounds between July 2018 and November 2020 with 17 working family caregivers of patients with a life-threatening illness living at home. Transcripts were analysed as a single unit to create timelines per participant. Next, individual burden tra

SUBMITTER: Bijnsdorp FM 

PROVIDER: S-EPMC9364551 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature