Dataset Information

Control Matters in Elder Care Technology:: Evidence and Direction for Designing It In.

ABSTRACT: Studies find that older adults want control over how technologies are used in their care, but how it can be operationalized through design remains to be clarified. We present findings from a large survey (n=825) of a well-characterized U.S. online cohort that provides actionable evidence of the importance of designing for control over monitoring technologies. This uniquely large, age-diverse sample allows us to compare needs across age and other characteristics with insights about future users and current older adults (n=496 >64), including those concerned about their own memory loss (n=201). All five control options, which are not currently enabled, were very or extremely important to most people across age. Findings indicate that comfort with a range of care technologies is contingent on having privacy- and other control-enabling options. We discuss opportunities for design to meet these user needs that demand course correction through attentive, creative work.

SUBMITTER: Berridge C

PROVIDER: S-EPMC9367632 | biostudies-literature | 2022 Jun

REPOSITORIES: biostudies-literature

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Publications

Control Matters in Elder Care Technology:: Evidence and Direction for Designing It In.

Berridge Clara C Zhou Yuanjin Y Lazar Amanda A Porwal Anupreet A Mattek Nora N Gothard Sarah S Kaye Jeffrey J

DIS. Designing Interactive Systems (Conference) 20220613

Studies find that older adults want control over how technologies are used in their care, but how it can be operationalized through design remains to be clarified. We present findings from a large survey (n=825) of a well-characterized U.S. online cohort that provides actionable evidence of the importance of designing for control over monitoring technologies. This uniquely large, age-diverse sample allows us to compare needs across age and other characteristics with insights about future users a ...[more]

PMID: 35969716

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Project description:ObjectivesPre-exposure prophylaxis (PrEP) is a key biomedical intervention for ending the HIV epidemic in the United States, but its uptake is impeded by systemic barriers, including fragmented workflows and ineffective data coordination. This study aims to design PrEPLinker, a blockchain-based, client-centered platform to enhance care to address these challenges by improving care coordination and enabling clients to securely manage their identity and PrEP-related data.Materials and methodsUsing Houston, Texas, as a use case, we conducted a needs assessment with PrEP collaborators to evaluate existing workflows and identify barriers in the PrEP care continuum. Based on these findings, we designed PrEPinker, a blockchain-based identity framework and digital wallet using self-sovereign identity and verifiable credentials (VCs). These features enable clients to securirely control their identity data and facilitate efficient, privacy-serving data sharing across PrEP service points, such as community testing sites, clinics, and pharmacies.ResultsThe needs assessment identified significant gaps in data exchange for PrEP referrals and follow-up appointments. In response, PrEPLinker was designed to incorporate decentralized identifiers-unique, secure digital identifiers that are not linked to any centralized authority-and VCs for ensuring seamless transfer of digital medical records. Preliminary usability testing with 15 participants showed that over 70% rated the interactive design positively, finding it easy to use, learn, and navigate without technical support. Additionally, more than 80% expressed confidence in using the blockchain based platform to manage sensitive health information securely.Discussion and conclusionBlockchain technology offers a promising, client-centered solution for addressing systemic barriers in PrEP care by improving data cordination, security, and client control over personal health information. The design of PrEPLinker demorates the potential to streamline PrEP referrals, follow-up processes, and data managent. These advancements in data coordination and secruity could improve PrEP uptake and adherence, supporting efforts to reduce HIV transmission in Houston and beyond.

Project description:IntroductionIn Swedish municipal elder care, there is a growing expectation that welfare technology (WT) will play a pivotal role in addressing the increasingly complex needs of older persons who receive municipal elder care. As the ageing population continues to rise, the strain on welfare resources both, human and financial, intensifies. The adoption of WT holds promise for enhancing the well-being of older persons, their significant others, organisations and caregiving staff. However, the perspectives of older persons, significant others, staff and decision-makers' on the aspects of security, activity, independence and participation that WT aims to influence needs further investigation. Thus, the overall purpose of the project is to explore how WT is perceived, implemented and experienced by different stakeholders within municipal elder care and to determine if, and how, WT contributes to the person's security, activity, participation and independence.Methods and analysisThe project has a qualitative approach and will use thematic analysis. Data will be collected through semistructured interviews with different stakeholders-(a) older persons, (b) significant others, (c) staff and (d) decision-makers (ie, local politicians and local governmental officials)-in organisations within municipal elder care that use WT.Ethics and disseminationThe study is approved by the Swedish Ethical Review Authority (Dnr 2023-07203-01). All participants will provide informed consent. Dissemination of the results will be achieved through scientific publications and presentations at national and international conferences. During manuscript preparation, the Standards for Reporting Qualitative Research will be followed. The knowledge gained from the project will be shared with participating organisations, where presentations and discussions regarding the project will be offered. Stakeholders and the public will also be offered opportunities to attend seminars and lectures provided by participating universities.

Dataset Information

Control Matters in Elder Care Technology:: Evidence and Direction for Designing It In.

Publications

Control Matters in Elder Care Technology:: Evidence and Direction for Designing It In.

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