Biological sample donation and informed consent for neurobiobanking: Evidence from a community survey in Ghana and Nigeria.

ABSTRACT:

Introduction

Genomic research and neurobiobanking are expanding globally. Empirical evidence on the level of awareness and willingness to donate/share biological samples towards the expansion of neurobiobanking in sub-Saharan Africa is lacking.

Aims

To ascertain the awareness, perspectives and predictors regarding biological sample donation, sharing and informed consent preferences among community members in Ghana and Nigeria.

Methods

A questionnaire cross-sectional survey was conducted among randomly selected community members from seven communities in Ghana and Nigeria.

Results

Of the 1015 respondents with mean age 39.3 years (SD 19.5), about a third had heard of blood donation (37.2%, M: 42.4%, F: 32.0%, p = 0.001) and a quarter were aware of blood sample st

SUBMITTER: Singh A 

PROVIDER: S-EPMC9371301 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature