Achieving child-centred care for children and young people with life-limiting and life-threatening conditions-a qualitative interview study.

ABSTRACT: This study aims to identify the symptoms, concerns, and care priorities of children with life-limiting conditions and their families. A semi-structured qualitative interview study was conducted, seeking perspectives from multiple stakeholders on symptoms, other concerns, and care priorities of children and young people with life limiting and life-threatening conditions and their families. Participants were recruited from six hospitals and three children's hospices in the UK. Verbatim transcripts were analysed using framework analysis. A total of 106 participants were recruited: 26 children (5-17 years), 40 parents (of children 0-17 years), 13 siblings (5-17 years), 15 health and social care professionals, 12 commissioners. Participants described many inter-related symptoms, concerns, and c

SUBMITTER: Coombes L 

PROVIDER: S-EPMC9371630 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature