Medical Research Charities and Biopharmaceutical Companies as Partners in Patient-Centred R&D.

ABSTRACT: Life science research and development (R&D) companies are all too aware of the importance of patient perspectives but also of the barriers to engaging directly with patients, not least compliance, complex technical and regulatory issues, and the need to meet multifaceted expectations. Medical research charities (MRCs), highly technical and professional organisations, work directly with patients; they represent an expert resource for the science of their field, for disease-related patient advocacy issues and to advise and assist R&D companies in devising meaningful trials. The Pistoia Alliance, a non-profit organisation facilitating life sciences R&D, gathered a number of UK MRCs focused on complex lifelong conditions. The group used workshops and an opinion questionnaire for a snapshot of

SUBMITTER: Flatau T 

PROVIDER: S-EPMC9371951 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature