Proxy-report in individuals with intellectual disability: A scoping review.

ABSTRACT:

Background

Views can be collected from individuals (self-report) or others on their behalf (proxy-report).

Objective

We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome.

Methods

A series of key questions related to statistical approaches and data collection methods were formulated a priori to inform the search strategy and review process. These addressed the topics of self-report in individuals with intellectual disability, including Down syndrome. Using the National Library of Medicine database, PubMed, detailed literature searches were performed. The quality of available evidence was then evaluated, the existing literature was sum

SUBMITTER: Santoro SL 

PROVIDER: S-EPMC9378492 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature