The PROactive cohort study: rationale, design, and study procedures.

ABSTRACT: Children with a chronic condition face more obstacles than their healthy peers, which may impact their physical, social-emotional, and cognitive development. The PROactive cohort study identifies children with a chronic disease at high risk of debilitating fatigue, decreased daily life participation and psychosocial problems, as well as children who are resilient and thrive despite the challenges of growing up with a chronic condition. Both groups will teach us how we can best support children, adolescents and parents to adapt to and manage a disease, as well as tailor interventions to their specific needs.This cohort follows a continuous longitudinal design. It is based at the Wilhelmina Children's Hospital (WKZ) in the Netherlands and has been running since December 2016. Children with a

SUBMITTER: Nap-van der Vlist MM 

PROVIDER: S-EPMC9385417 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature