Parents' views on accepting, declining, and expanding newborn bloodspot screening.

ABSTRACT:

Introduction

The goal of newborn bloodspot screening (NBS) is the early detection of treatable disorders in newborns to offer early intervention. Worldwide, the number of conditions screened for is expanding, which might affect public acceptance. In the Netherlands, participation is high (>99%), but little is known about how parents perceive NBS. This study assessed parents' views on accepting, declining and expanding NBS.

Methods

A total of 804 of 6051 (13%) invited parents who participated in NBS in the Netherlands during the last two weeks of December 2019, and 48 of 1162 (4%) invited parents who declined participation in NBS in 2019 and 2020, completed a questionnaire.

Results

The most important reason for parents to participate in NBS was to prevent health compla

SUBMITTER: van der Pal SM 

PROVIDER: S-EPMC9387838 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature