Patient lead users experience of the COVID-19 pandemic: a qualitative interview study.

ABSTRACT:

Objectives

Patient lead users can be defined as patients or relatives who use their knowledge and experience to improve their own or a relative's care situation and/or the healthcare system, and who are active beyond what is usually expected. The objective of this study is to explore patient lead users' experiences and engagement during the early COVID-19 pandemic.

Design

Qualitative in-depth interviews with a cross-sectional time horizon.

Setting

The early COVID-19 pandemic in Sweden, from 1 June through 14 September, 2020.

Participants

A total of 10 patient lead users were recruited from the Swedish patient lead users (spetspatient) network. All participants were living with different long-term conditions and matched the definition of being patient lea

SUBMITTER: Jansson H 

PROVIDER: S-EPMC9388713 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature