The Impact of Hypermobile "Ehlers-Danlos Syndrome" and Hypermobile Spectrum Disorder on Interpersonal Interactions and Relationships.

ABSTRACT:

Background

People with Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders are hampered in their social participation, especially in the social relationships they have.

Objective

The aim of this study is to research the impact of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobile Spectrum Disorders (HSD) on interpersonal interactions and relationships.

Methods

A phenomenological hermeneutic study was performed. Semi-structured interviews were used to explore the experiences of 11 participants.

Results

Four themes emerged from the data analysis. (1) people with hEDS or HSD can no longer do what they want to do and that affects their identity, (2) people with hEDS or HSD have to find a balance in the amount of activities they participate in, (3) h

SUBMITTER: De Baets S 

PROVIDER: S-EPMC9397711 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature