Evolution of a research team: the patient partner perspective.

ABSTRACT:

Introduction

Despite a movement toward the inclusion of patient partners or advisors as part of the research team in all funded studies, few publications have discussed patient engagement from the patient partners' perspective.

Methods

Qualitative interviews were conducted by independent qualitative researchers to collect and summarize the experiences and perspectives of the 16 Patient Partners (PPs) on the study team for PeRson EmPowered Asthma RElief (PREPARE), a large, pragmatic study of 1200 African American/Black (AA/B) and Hispanic/Latinx (H/L) adults with asthma. This study was funded by the Patient-Centered Outcomes Research Institute.

Results

This paper, authored by the PPs themselves, summarizes qualitative interview findings. The journey of the PREPARE PPs

SUBMITTER: Madison S 

PROVIDER: S-EPMC9400573 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature