The impact of lockdown on young people with genetic neurodevelopmental disabilities: a study with the international participatory database GenIDA.

ABSTRACT:

Background

Previous publications suggested that lockdown is likely to impact daily living issues of individuals with intellectual disabilities. The authors notably suspected an intensification of behavioural, eating and sleep problems.

Methods

To test these hypotheses, we conducted an international online survey about the impact of COVID-19-associated first lockdown on people with genetic neurodevelopmental disorders. This survey was carried out using GenIDA, an international participatory database collecting medical information on genetic neurodevelopmental disorders. Patients' relatives took part in this online survey from 30/04/2020 to 09/06/2020. This survey adapted from GenIDA standard questionnaire requested information on diagnosis, lifestyle and was based on yes/no a

SUBMITTER: Coutelle R 

PROVIDER: S-EPMC9403223 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature