Perspectives and experiences of researchers regarding feedback of incidental genomic research findings: A qualitative study.

ABSTRACT:

Background

There is a plethora of unanswered ethical questions about sharing incidental findings in genetics and genomics research. Yet understanding and addressing such issues is necessary for communicating incidental findings with participants. We explored researchers' perspectives and experiences regarding feedback of incidental genomics findings to participants.

Methods

This was a qualitative study using semi-structured interview schedules for In-depth interviews. Thirty respondents were purposively selected based on role as genetics and genomics researchers in Uganda. Data were analysed through content analysis to identify emerging themes using a comprehensive thematic matrix. QSR International NVivo software was used to support data analysis.

Results

a). On perc

SUBMITTER: Ochieng J 

PROVIDER: S-EPMC9423610 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature