Dataset Information

Patient-reported supportive care needs among Asian American cancer patients.

ABSTRACT:

Purpose

Cancer is the leading cause of death for Asian Americans. However, few studies have documented supportive care needs from the perspective of Asian American cancer patients. This study describes the needs reported by Asian American patients with colorectal, liver, or lung cancer over a 6-month period during their treatment.

Methods

Participants were recruited through the Greater Bay Area Cancer Registry and from cancer care providers in San Francisco. Participants self-identified as Asian or Asian American; were age 21 or older; spoke English, Chinese, or Vietnamese; and had stage I-III colon, rectum, liver, or lung cancer. Participants were matched with a language concordant patient navigator who provided support during a 6-month period. Needs were assessed by surveys at baseline, 3, and 6 months.

Results

Among 24 participants, 58% were 65 years or older, 42% did not complete high school, and 75% had limited English proficiency (LEP). At baseline, the most prevalent needs were cancer information (79%), nutrition and physical activity (67%), language assistance (54%), and daily living (50%). At the 3- and 6-month follow-up surveys, there was a higher reported need for mental health resources and healthcare access among participants.

Conclusion

In this pilot study of Asian American cancer patients who predominantly had LEP, participants reported many needs, with cancer information and language assistance as the most prominent. The findings highlight the importance of culturally and linguistically appropriate patient navigators in addressing supportive care needs among cancer patients with LEP.

Trial registration

ClinicalTrials.gov identifier: NCT03867916.

SUBMITTER: Wang K

PROVIDER: S-EPMC9424805 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature

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Publications

Patient-reported supportive care needs among Asian American cancer patients.

Wang Katarina K Ma Carmen C Li Feng Ming FM Truong Angeline A Shariff-Marco Salma S Chu Janet N JN Oh Debora L DL Allen Laura L Kuo Mei-Chin MC Wong Ching C Bui Hoan H Chen Junlin J Gomez Scarlett L SL Nguyen Tung T TT Tsoh Janice Y JY

Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer 20220830 11

<h4>Purpose</h4>Cancer is the leading cause of death for Asian Americans. However, few studies have documented supportive care needs from the perspective of Asian American cancer patients. This study describes the needs reported by Asian American patients with colorectal, liver, or lung cancer over a 6-month period during their treatment.<h4>Methods</h4>Participants were recruited through the Greater Bay Area Cancer Registry and from cancer care providers in San Francisco. Participants self-iden ...[more]

PMID: 36040670

Similar Datasets

Project description:ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients' needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients' responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients' level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients' coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

Dataset Information

Patient-reported supportive care needs among Asian American cancer patients.

Purpose

Methods

Results

Conclusion

Trial registration

Publications

Patient-reported supportive care needs among Asian American cancer patients.

Similar Datasets

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