[Sustainable reimbursement of the B‑centres for rare diseases in Germany-status quo and solution approaches].

ABSTRACT:

Background

To ensure specialized care of patients with rare diseases, numerous centres for rare diseases were funded over the past few years. The reimbursement of patients' ambulatory care in hospitals, however, is characterized by a plurality of forms of care and payment. There is some evidence of deficits in the reimbursement of care of patients suffering from a rare disease from studies on individual rare diseases.

Objectives

To investigate current forms of care provision and reimbursement of centres for rare diseases and to develop future approaches for sustainable compensation.

Materials and methods

Initially, centres for rare diseases in Germany were asked to provide information about their forms of care and reimbursement using questionnaires. Subsequently, two

SUBMITTER: Litzkendorf S 

PROVIDER: S-EPMC9436832 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature