Couples' Experiences Managing Young-Onset Dementia Early in the COVID-19 Pandemic.

ABSTRACT:

Background and objectives

The coronavirus disease 2019 (COVID-19) pandemic created unexpected stressors for society and could disproportionately affect more vulnerable groups. One such group is couples facing young-onset dementias (YOD), who experience pandemic-induced stressors alongside ongoing YOD-related stressors (e.g., progressive symptoms, increased caregiving needs). Using a qualitative design, our objective was to characterize the experiences of couples living with YOD early in the COVID-19 pandemic and the impact on couples' 'relationships' and well-being.

Research design and methods

Couples (N = 23) of persons with YOD and their spousal caregivers participated in a 1 hour live video, joint interview during the early COVID-19 pandemic. We used a hybrid inductive-de

SUBMITTER: Bannon SM 

PROVIDER: S-EPMC9451019 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature