Understanding patient partnership in health systems: lessons from the Canadian patient partner survey.

ABSTRACT:

Objectives

To examine the sociodemographic characteristics, activities, motivations, experiences, skills and challenges of patient partners working across multiple health system settings in Canada.

Design

Online cross-sectional survey of self-identified patient partners.

Setting

Patient partners in multiple jurisdictions and health system organisations.

Participants

603 patient partners who had drawn on their experiences with the health system as a patient, family member or informal caregiver to try to improve it in some way, through their involvement in the activities of a group, organisation or government.

Results

Survey respondents predominantly identified as female (76.6%), white (84%) and university educated (70.2%) but were a heterogeneous group in

SUBMITTER: Abelson J 

PROVIDER: S-EPMC9454068 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature