From ivory tower to inclusion: Stakeholders' experiences of community engagement in Australian autism research.

ABSTRACT: Autistic people, and other community stakeholders, are gaining increasing recognition as valuable contributors to autism research, resulting in a growing corpus of participatory autism research. Yet, we know little about the ways in which stakeholders practice and experience community engagement in autism research. In this study, we interviewed 20 stakeholders (academics, autistic people, family members/careers, research students, and service providers) regarding their experiences of community engagement in Australian autism research. Through reflexive thematic analysis of interview data, we generated four themes. First, our participants perceived academia as an "ivory tower," disconnected from community members' lives and priorities. Second, our participants identified that different stak

SUBMITTER: den Houting J 

PROVIDER: S-EPMC9454607 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature