Characterizing User Engagement With a Digital Intervention for Pain Self-management Among Youth With Sickle Cell Disease and Their Caregivers: Subanalysis of a Randomized Controlled Trial.

ABSTRACT:

Background

Sickle cell disease (SCD) is characterized by severe acute pain episodes as well as risk for chronic pain. Digital delivery of SCD pain self-management support may enhance pain self-management skills and accessibility for youth. However, little is known about how youth with SCD and their caregivers engage with digital health programs. iCanCope with pain is a digital pain self-management platform adapted for youth with SCD and caregivers through a user-centered design approach. The program was delivered via a website (separate versions for youth and caregiver) and mobile app (youth only).

Objective

We aimed to characterize patterns of user engagement with the iCanCope with SCD program among youth with SCD and their caregivers.

Methods

A randomized controlled

SUBMITTER: Lalloo C 

PROVIDER: S-EPMC9472047 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature