A report on parent involvement in planning a randomised controlled trial in neonatology and lactation - insights for current and future research.

ABSTRACT:

Background

Patient and Public Involvement (PPI) is a rich and valuable part of the process of planning, designing, carrying out and disseminating research. It is important to communicate PPI findings in detail so that the contributions of those involved are fully utilised and disseminated. The extended and iterative PPI process used within a neonatal randomised controlled trial related to the expression of breastmilk after very preterm birth is reported here.

Methods

Seven iterative stages of PPI were used. Stage 1 was informal PPI using historical interaction with parents and publicly available resources. Stage 2 was an online questionnaire open to parents of premature babies and advertised via a charity collaborator. Stage 3 was partnership with a charity collaborator. Sta

SUBMITTER: Levene I 

PROVIDER: S-EPMC9472727 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature