Decisional needs of patients with recurrent high-grade glioma and their families.

ABSTRACT:

Background

High-grade gliomas are aggressive and life-threatening brain tumors. At the time of recurrence, the patients and their families need to decide on future treatment. None of the treatment options are curative, and tradeoffs between benefits and harms must be made. This study aimed to explore the patients' and family members' decisional needs when making the decision.

Methods

We performed semi-structured individual interviews with patients and family members to explore their experiences during the decision making. A phenomenological hermeneutical analysis was conducted.

Results

A total of 15 patients and 14 family members aged 22-79 years participated in the study. Most of the family members were partners to the patient. The findings were centered around three

SUBMITTER: Sorensen von Essen H 

PROVIDER: S-EPMC9476966 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature