NAMD: optimization of patient care and patient-oriented information with the help of an internet-based survey.

ABSTRACT:

Purpose

This survey was conducted to identify factors that influence how patients with neovascular age-related macular degeneration (nAMD) deal with their disease and information that are considered useful from a patient's point of view.

Methods

A total of 5035 patients with nAMD living in Germany were interviewed via internet-based cross-sectional survey, where the following information was collected: personal data, disease awareness, and patients' needs. In addition, a Quality of Life questionnaire (SF-12v2) could be completed.

Results

Out of the 5035 participants, more males than females participated (55% vs 45%), and most participants were in the age groups 76 to 85 years (37%) and 66 to 75 years (35%). Seventy-three percent of patients rated their understanding o

SUBMITTER: Schmid A 

PROVIDER: S-EPMC9477947 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature