The quality of life of parents of children with down syndrome in a tertiary care hospital: A qualitative research study at Saudi Arabia.

ABSTRACT:

Background

As children with down syndrome (DS) usually have significant morbidities, they can also represent a significant burden on their caregivers and impact their quality of life (QoL). We conducted this study to investigate whether or not having DS children can impact the different domains of the QoL of their caregivers in Saudi Arabia.

Methods

This is a cross-sectional phenomenological qualitative research study that was conducted in a tertiary care hospital, Riyadh, Saudi Arabia. To assess the study outcomes, we used the WHOQOL-BREF to assess the different domains of the QoL.

Results

We have included 261 caregivers to DS children that responded to our questionnaire. The mean (SD) scores for the WHOQOL-BREF domains were 84 (±15), 88 (±15), 41 (±10), and 105 (±24

SUBMITTER: AlAhmari FS 

PROVIDER: S-EPMC9486666 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature