Challenges and knowledge gaps facing hemophilia carriers today: Perspectives from patients and health care providers.

ABSTRACT:

Background

Hemophilia carriers experience abnormal bleeding symptoms; however, a lack of awareness about this topic coupled with additional knowledge gaps and barriers leads to suboptimal care for this population.

Objective

The primary objective was to describe the current knowledge gaps and challenges from the perspective of both hemophilia carriers and their health care providers.

Methods

We carried out a mixed methods descriptive study with two population groups between September and December 2020. The hemophilia carrier perspective was obtained through both focus groups and questionnaires, whereas the health care providers perspective obtained via questionnaire sent to the Association of Hemophilia Care Directors of Canada and the Canadian Association of Nurses in

SUBMITTER: Chaigneau M 

PROVIDER: S-EPMC9487445 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature