A Study of Publicly Available Resources Addressing Legal Data-Sharing Barriers: Systematic Assessment.

ABSTRACT:

Background

United States data protection laws vary depending on the data type and its context. Data projects involving social determinants of health often concern different data protection laws, making them difficult to navigate.

Objective

We systematically aggregated and assessed useful online resources to help navigate the data-sharing landscape.

Methods

We included publicly available resources that discussed legal data-sharing issues with some health relevance and published between 2010 and 2019. We conducted an iterative search with a common string pattern using a general-purpose search engine that targeted 24 different sectors identified by Data Across Sectors for Health. We scored each online resource for its depth of legal and data-sharing discussions and value

SUBMITTER: Karim MA 

PROVIDER: S-EPMC9490527 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature