Living with a left ventricular assist device: Capturing recipients experiences using group concept mapping software.

ABSTRACT:

Background

Left ventricular assist device (LVAD) implantation significantly impacts on a recipient's symptoms and quality of life. Capturing their experiences and post implant journey is an important part of clinical practice, research and device design evolution. Patient reported outcome measures (PROMs) are a useful tool for capturing that experience. However, patient reported outcome measures need to reflect recipients' experiences. Discussions with a patient partner group found that none of the frequently used cardiology PROMs captured their unique experiences.

Aims

To capture the experiences and important issues for LVAD recipients. Develop a conceptual map of domains and items that should be reflected in patient reported outcomes.

Methods

Group concept mapping (

SUBMITTER: Slade AL 

PROVIDER: S-EPMC9491568 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature