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Dataset Information

Survey uncovering variations in the management of primary sclerosing cholangitis across Europe.


ABSTRACT:

Background & aims

Data on the management of primary sclerosing cholangitis (PSC) in European expert centres are sparse. In this study, a PSC group from the ERN RARE-LIVER surveyed European hepatologists to uncover differences in real-life clinical practices.

Methods

In April 2020 a survey questionnaire was sent to members of the International PSC Study Group and ERN RARE-LIVER. Participants were asked about the size of their PSC cohort, use of medical treatments including ursodeoxycholic acid (UDCA) and surveillance for cholangiocarcinoma, gallbladder polyps and inflammatory bowel disease (IBD). Data were presented descriptively.

Results

Eighty-two of 278 members responded. Fifty percent of physicians prescribed UDCA routinely to all their patients with PSC, whereas 1

SUBMITTER: Eliasson J 

PROVIDER: S-EPMC9508339 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature