Development and implementation of the AIDA International Registry for patients with Behcet's disease.

ABSTRACT: Purpose of the present paper is to point out the design, development and deployment of the AutoInflammatory Disease Alliance (AIDA) International Registry dedicated to pediatric and adult patients with Behçet's disease (BD). The Registry is a clinical physician-driven non-population- and electronic-based instrument implemented for the retrospective and prospective collection of real-life data about demographics, clinical, therapeutic, laboratory, instrumental and socioeconomic information from BD patients; the Registry is based on the Research Electronic Data Capture (REDCap) tool, which is thought to collect standardised information for clinical real-life research, and has been realised to change over time according to future scientific acquisitions and potentially communicate with other

SUBMITTER: Vitale A 

PROVIDER: S-EPMC9522756 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature