Public Deliberation Process on Patient Perspectives on Health Information Sharing: Evaluative Descriptive Study.

ABSTRACT:

Background

Precision oncology is one of the fastest-developing domains of personalized medicine and is one of many data-intensive fields. Policy for health information sharing that is informed by patient perspectives can help organizations align practice with patient preferences and expectations, but many patients are largely unaware of the complexities of how and why clinical health information is shared.

Objective

This paper evaluates the process of public deliberation as an approach to understanding the values and preferences of current and former patients with cancer regarding the use and sharing of health information collected in the context of precision oncology.

Methods

We conducted public deliberations with patients who had a current or former cancer diagnosis

SUBMITTER: Raj M 

PROVIDER: S-EPMC9526123 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature