The experience of patient partners in research: a qualitative systematic review and thematic synthesis.

ABSTRACT:

Context

Patient engagement in research consists in involving patients as partners across the research cycle. This practice has quickly become an international standard, with funding bodies actively encouraging it. As the increased incentive to engage patients can lead to tokenistic partnerships, it is important to consider the experiences of patient-partners.

Objective

To synthesize the qualitative literature on the experience of patients as partners in research.

Design

A systematic review of the literature with thematic synthesis was realized, guided by the framework developed by Thomas and Harden (Bmc Med Res Methodol 8: 45, 2008).

Data collection

A search strategy was developed to encompass keywords relating to patient-partners in research, their experience,

SUBMITTER: Lauzon-Schnittka J 

PROVIDER: S-EPMC9528123 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature