Dying of mesothelioma: A qualitative exploration of caregiver experiences.

ABSTRACT:

Objective

To explore the experience of family caregivers of people with mesothelioma with focus on end-of-life issues.

Methods

A qualitative sub-study using semi-structured interviews and thematic analysis.

Results

Fourteen caregivers were interviewed; 11 were bereaved. The overarching theme was the impact of patients' diagnosis, treatment and death on caregivers and families. Three main themes were identified: (i) information provision and decision-making; (ii) grief and bereavement; and (iii) involvement and timing of palliative care. Caregivers initially had minimal knowledge of mesothelioma and wanted more information. Prognostic uncertainty caused distress. Grief and bereavement sub-themes were (i) coping and personal priorities; (ii) reflections on dying; and (i

SUBMITTER: Lee JT 

PROVIDER: S-EPMC9539703 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature