Financial burden for caregivers of adolescents and young adults with cancer.

ABSTRACT:

Objective

Adolescent and young adult (AYA) cancer survivors are vulnerable to cancer-related financial burden, which is likely shared by their caregivers. This study aims to enhance an existing conceptual model of financial burden by conducting concept elicitation interviews with caregivers to generate knowledge that can be translated to inform instrumental and psychosocial support in cancer care.

Methods

Qualitative concept elicitation interviews were conducted with 24 caregivers of AYA cancer survivors (caregivers of adolescents, n = 12; caregivers of emerging adults, n = 12) recruited from four sites. Constant comparative methods were used to identify themes, and results were interpreted and organized into domains of the conceptual model. We also explored COVID-19 related

SUBMITTER: Nightingale CL 

PROVIDER: S-EPMC9540021 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature