Inflammatory bowel disease patient-reported quality assessment should drive service improvement: a national survey of UK IBD units and patients.

ABSTRACT:

Background

Healthcare service provision in inflammatory bowel disease (IBD) is often designed to meet targets set by healthcare providers rather than those of patients. It is unclear whether this meets the needs of patients, as assessed by patients themselves.

Aims

To assess patients' experience of IBD and the healthcare they received, aiming to identify factors in IBD healthcare provision associated with perceived high-quality care.

Methods

Using the 2019 IBD standards as a framework, a national benchmarking tool for quality assessment in IBD was developed by IBD UK, comprising a patient survey and service self-assessment.

Results

134 IBD services and 9757 patients responded. Perceived quality of care was lowest in young adults and increased with age, was high

SUBMITTER: Hawthorne AB 

PROVIDER: S-EPMC9541797 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature