Multidisciplinary integrated care pathway for von Hippel-Lindau disease.

ABSTRACT:

Background

Clinical pathways are care plans established to describe essential steps in the care of patients with a specific clinical problem. They translate (inter)national guidelines into local applicable protocols and clinical practice. The purpose of this article is to establish a multidisciplinary integrated care pathway for specialists and allied health care professionals in caring for individuals with von Hippel-Lindau (VHL) disease.

Methods

Using a modified Delphi consensus-making process, a multidisciplinary panel from 5 Dutch University Medical Centers produced an integrated care pathway relating to the provision of care for patients with VHL by medical specialists, specialized nurses, and associated health care professionals. Patient representatives cocreated the p

SUBMITTER: Wolters WPG 

PROVIDER: S-EPMC9542729 | biostudies-literature | 2022 Aug

REPOSITORIES: biostudies-literature