Fatigue and activity management education for individuals with systemic sclerosis: Adaptation and feasibility study of an intervention for a rare disease.

ABSTRACT:

Purpose

Fatigue is an overlooked symptom for musculoskeletal diseases, including rare conditions like systemic sclerosis (SSc). The purpose of this study were the following: (1) to adapt the content and delivery method of an existing fatigue intervention, and (2) to determine the feasibility of Fatigue and Activity Management Education in Systemic Sclerosis (FAME-iSS).

Methods

In Phase 1 adaptations were recorded using the Framework for Modification and Adaptations. In Phase 2, participants completed the 6-week FAME-iSS intervention and baseline, post-intervention, and 3-month follow-up assessments measuring fatigue levels, fatigue impact, mental health, self-efficacy, and use of energy conservation strategies. Qualitative data included a post-intervention focus group and 3-

SUBMITTER: Carandang K 

PROVIDER: S-EPMC9544914 | biostudies-literature | 2022 Sep

REPOSITORIES: biostudies-literature