Measuring a Patient's understanding of their prognosis: An exploratory analysis.

ABSTRACT:

Objective

In patients with cancer across the illness trajectory, treatment decisions are often influenced by one's perception of their prognosis (i.e., curability of disease, life expectancy, quality of life). However, research on how patients understand their prognosis (i.e., prognostic understanding) has been limited by simplistic measurement tools that fail to capture the complexity of the construct. This study describes the initial development of a measure of prognostic understanding: the Prognostic Understanding Perceptions Scale (PUPS) for use in patients with advanced cancer.

Method

An initial pool of 16 candidate items were developed through semi-structured interviews with 15 experts (oncology, psycho-oncology and palliative care professionals) and 30 advanced cancer

SUBMITTER: Rosenfeld B 

PROVIDER: S-EPMC9547961 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature