Support staff liaising effectively with family caregivers: Findings from a co-design event and recommendation for a staff training resource.

ABSTRACT: A high proportion of people with intellectual disabilities (ID) and autism spectrum disorder (ASD) are prescribed psychotropic medications such as antipsychotics, antidepressants etc., outside their licensed indications, primarily for the management of behaviors that challenge (BtC) in the absence of a psychiatric disorder. Examples of BtC are aggression to people and property or self-injury. BtC could be challenging to manage and may cause the person with ID/ASD and their caregivers distress, breakdown of community placement leading to hospitalization, and restrictive practices such as restraint or inappropriate medication use. Caregivers play a pivotal role in the prescribing process. However, many family caregivers feel that they have not been fully involved in the shared decision-makin

SUBMITTER: Deb S 

PROVIDER: S-EPMC9555056 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature