Assessing the state of care for Huntington disease in the United States: Results from a survey of practices treating Huntington disease patients

ABSTRACT: Highlights • This research study of 156 US healthcare practices is the first of its kind to include non-specialty neurologists and primary care physician practices, as well as academic practices surveyed about their treatment of Huntington disease patients.• One-half of HD practices surveyed saw 2 or less patients per month, while about one quarter of practices saw 1 or more patients per week.• HD care appears to be inconsistently applied across the US. Differences were noted in a practice’s ability to provide care navigators, genetic counselors, or psychologists/psychiatrists, or to conduct pre-visit screening of their patients, or routinely monitor weight.• Practices seeing a higher volume of HD patients and ones led by movement disorder-trained neurologists, tended to be better equipped

SUBMITTER: Seeberger L 

PROVIDER: S-EPMC9574766 | biostudies-literature | 2022 Jan

REPOSITORIES: biostudies-literature