Improving communication of the concept of 'treat-to target' in childhood lupus: a public and patient (PPI) engagement project involving children and young people.

ABSTRACT:

Background

A treat-to-target (T2T) approach, where treatment is escalated until a specific target is achieved, and re-escalated if the target is lost, has been proposed as a strategy to improve Childhood Systemic Lupus Erythematosus (cSLE) outcomes. Previous studies involving children and young people (CYP) have identified that the concept of T2T can be difficult to understand by CYP and their families. We aimed to explore the views of CYP participating in existing public and patient involvement (PPI) groups in relation to a proposed animation that is being developed to explain the concept of T2T to CYP who will be eligible for a future cSLE T2T trial.

Methods

An illustrated animation storyboard was developed on PowerPoint, to be used alongside a contemporaneous voiceover to

SUBMITTER: Elliott RS 

PROVIDER: S-EPMC9578343 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature