A Health Literate Approach to Address Health Disparities: a Virtual Program for Parents of Children with Sickle Cell Trait.

ABSTRACT:

Background

Approximately 8% of African Americans born annually have sickle cell trait (SCT), a public health concern that may contribute to health disparities if individuals with SCT do not know it and lack access to understandable information about reproductive implications. Pre-pandemic, Ohio offered in-person SCT education for parents of SCT-affected children but many did not attend. Those with limited health literacy (HL) were less likely to achieve high knowledge. We used a HL-focused evaluation of this education to develop a virtual program (SCTaware) to communicate clear, actionable information and promote knowledge retention.

Methods

Seven English-speaking parents, three with limited HL, were recruited in 2019 for in-person session videotaping and SCT knowledge asses

SUBMITTER: Abrams MA 

PROVIDER: S-EPMC9586455 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature