Patient and public involvement in an international rheumatology translational research project: an evaluation.

ABSTRACT:

Background

Rheuma Tolerance for Cure (RTCure) is a five-year international collaboration between academia, industry and patients/members of the public. It focuses on developing approaches to predict the onset of rheumatoid arthritis (RA) and designing clinical trials to reduce the risk of disease development through immune-tolerising and other treatments. We conducted a mid-term evaluation of patient and public involvement (PPI) within the project.

Methods

Two surveys on PPI were co-designed by the PPI Coordinator, Patient/Public Research Partners (PRPs) and a researcher. Both anonymous, electronic surveys were distributed to 61 researchers and 9 PRPs. Quantitative survey data were analysed using descriptive statistics and free text responses underwent inductive thematic ana

SUBMITTER: de Souza S 

PROVIDER: S-EPMC9588249 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature