Dataset Information

Concerns and needs of people with intellectual disabilities and their caregivers during the COVID-19 pandemic in Japan.

ABSTRACT:

Background

People with intellectual disabilities (IDs) and their caregivers face difficulties during the COVID-19 pandemic. However, limited studies have comprehensively investigated their challenges, especially in Japan. We aimed to clarify the concerns and needs of people with IDs and their caregivers during the COVID-19 pandemic in Japan.

Method

From March to August 2021, 27 in-depth interviews were conducted with principal caregivers of people with moderate to profound IDs in Japan. We then transcribed the interviews and conducted deductive coding using predetermined codes focused on their daily life difficulties. Inductive coding was used to ensure that no important themes were overlooked.

Results

We found four concerns and four needs among people with IDs and their caregivers as significant themes.

Conclusions

Our results provide useful information for supporting people with IDs and their caregivers, especially among those who need medical or social care in accordance with the infection control and social-distancing policies.

SUBMITTER: Furukawa S

PROVIDER: S-EPMC9606640 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature

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Publications

Concerns and needs of people with intellectual disabilities and their caregivers during the COVID-19 pandemic in Japan.

Furukawa Sawako S Nawa Nobutoshi N Yamaoka Yui Y Fujiwara Takeo T

Journal of intellectual disabilities : JOID 20221026 1

<b>Background:</b> People with intellectual disabilities (IDs) and their caregivers face difficulties during the COVID-19 pandemic. However, limited studies have comprehensively investigated their challenges, especially in Japan. We aimed to clarify the concerns and needs of people with IDs and their caregivers during the COVID-19 pandemic in Japan. <b>Method:</b> From March to August 2021, 27 in-depth interviews were conducted with principal caregivers of people with moderate to profound IDs in ...[more]

PMID: 36286242

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Project description:BackgroundPeople with mental disorders and intellectual disabilities experience excess mortality compared with the general population. The impact of COVID-19 on exacerbating this, and in widening ethnic inequalities, is unclear.MethodsProspective data (N=167,122) from a large mental healthcare provider in London, UK, with deaths from 2019 to 2020, used to assess age- and gender-standardised mortality ratios (SMRs) across nine psychiatric conditions (schizophrenia-spectrum disorders, affective disorders, somatoform/ neurotic disorders, personality disorders, learning disabilities, eating disorders, substance use disorders, pervasive developmental disorders, dementia) and by ethnicity.FindingsPrior to the World Health Organization (WHO) declaring COVID-19 a public health emergency on 30th January 2020, all-cause SMRs across all psychiatric cohorts were more than double the general population. By the second quarter of 2020, when the UK experienced substantial peaks in COVID-19 deaths, all-cause SMRs increased further, with COVID-19 SMRs elevated across all conditions (notably: learning disabilities: SMR: 9.24 (95% CI: 5.98-13.64), pervasive developmental disorders: 5.01 (95% CI: 2.40-9.20), eating disorders: 4.81 (95% CI: 1.56-11.22), schizophrenia-spectrum disorders: 3.26 (95% CI: 2.55-4.10), dementia: 3.82 (95% CI: 3.42, 4.25) personality disorders 4.58 (95% CI: 3.09-6.53)). Deaths from other causes remained at least double the population average over the whole year. Increased SMRs were similar across ethnic groups.InterpretationPeople with mental disorders and intellectual disabilities were at a greater risk of deaths relative to the general population before, during and after the first peak of COVID-19 deaths, with similar risks by ethnicity. Mortality from non-COVID-19/ other causes was elevated before/ during the pandemic, with higher COVID-19 mortality during the pandemic.FundingESRC (JD, CM), NIHR (JD, RS, MH), Health Foundation (JD), GSK, Janssen, Takeda (RS).

Dataset Information

Concerns and needs of people with intellectual disabilities and their caregivers during the COVID-19 pandemic in Japan.

Background

Method

Results

Conclusions

Publications

Concerns and needs of people with intellectual disabilities and their caregivers during the COVID-19 pandemic in Japan.

Similar Datasets

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