Reconciling validity and challenges of patient comfort and understanding: Guidelines to patient-oriented questionnaires.

ABSTRACT:

Background

Patient-reported outcome measures (PROMs) are widely recognized as important tools for achieving a patient-centred approach in health research. While PROMs are subject to several stages of validation during development, even questionnaires with robust psychometric properties may challenge patient comfort and understanding.

Aim

Building on the experience of patient engagement in the PriCARE research programme, this paper outlines the team's response to concerns raised by patient partners regarding the administration of the questionnaire.

Methods

Based on a participatory action research design and the patient engagement framework in the Strategy for Patient-Oriented Research of the Canadian Institutes of Health Research, PriCARE team members worked together t

SUBMITTER: Hudon C 

PROVIDER: S-EPMC9615088 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature