Evaluation of Clinical Practice Guidelines for Rare Diseases in Japan.

ABSTRACT:

Introduction

The insufficient quantity and quality of clinical epidemiological evidence in the field of rare diseases have posed methodological challenges to develop clinical practice guidelines (CPGs). Guideline development groups struggle to provide patients and their families with beneficial guidance, such as that for medical care and in complex circumstances. Motivated by the challenges, we focused on information on resources for supporting the daily and social life to improve the CPGs for users. We aimed to assess the methodological quality of CPGs for rare diseases in Japan and to evaluate information on resources to support the daily and social life in the CPGs.

Methods

We conducted a systematic search using PubMed, three electronic Japanese databases, and two hand-se

SUBMITTER: Uchida T 

PROVIDER: S-EPMC9646292 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature